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Some community healthcare workers (CHWs) working in KwaZulu-Natal (KZN), screening for Covid-19 and tracing contacts of persons with the disease, are concerned about rising levels of stigma.
In April the situation escalated when angry residents burnt tyres outside Untunjambili Hospital, near KwaDukuza in KwaZulu-Natal over the admission of ten people with Covid-19 at the hospital. The hospital is used as in isolation facility for people who test positive for SARS-CoV-2 (the virus that causes Covid-19).
The incident prompted KZN Health MEC Nomagugu Simelane-Zulu to call for “the eradication of stigma against people who have been diagnosed with Covid–19”. Simelane-Zulu said in a statement at the time, the unrest “is uncalled-for, and may be a symptom of a lack of understanding of Covid–19, which needs to change”. Similar flare-ups were also recorded in Pinetown and Chatsworth.
By 20 May KZN had recorded 1 815 Covid-19 cases, 49 deaths and 1 111 recoveries.
From the frontlines
CHW Bandile Mbengani agrees that misconceptions about the disease are a big problem. Mbengani has been a CHW for 17 years and much of her work until now was around HIV and TB awareness, treatment and empowerment in Tongaat, north of Durban. Mbengani says misconceptions about Covid-19 must be addressed during the screening and testing campaigns. She says awareness around Covid-19 also needs to be extended post screening and testing.
“At this stage, most citizens are aware of Covid-19 as a virus with the threat of death. They also know the precautions and some ways to protect themselves with help from the media and the Department of Health. While the screening and testing of citizens to help track Covid-19 is underway, a lot more should be done to educate people on what happens after testing,” she says.
Mbengani is not doing house calls at present. She, along with other CHWs are stationed at mobile testing stations in communities. She told Spotlight her duties at the moment is focused on screening and teaching people how to keep themselves safe. “But people are frightened during, and even after they test and screen because we don’t have enough information to help demystify stigma related to the virus, mostly because it’s new to scientists, health practitioners and community health workers. We need to highlight that diagnosing Covid-19 is only done through testing.”
Echoes of HIV and TB stigma
Another CHW, Nontobeko Mhlongo, who works in Phoenix and Inanda, says this stigma echoes the impact of the stigma that has always been associated with TB and HIV in many communities. “The inevitable socio-outcomes caused by a global pandemic include fear and panic. We are once again witnessing a re-run – the spread of false information on people infected by the coronavirus.
Misinformation manifests itself into stigma – negatively labelling and stamping those affected,” says Mhlongo. Alison Best of TB/HIV Care (an NGO) makes a similar point. “One of the biggest lessons learnt about stigma from the HIV and the TB response is how destructive stigma is. We have a cure for TB and a treatment for HIV, but TB is still South Africa’s leading cause of death and there are many people living with HIV who are not on treatment. One of the major reasons for this is stigma.
The perceived consequences of being known to have one of these diseases are so severe that people stay in denial, avoid care, and become sick,” says Best. This, she says, may hamper response efforts in the Covid-19 pandemic.
Convoy of police vehicles and an ambulance
Mhlongo has been a community health care worker (CHW) for seven years. She tells Spotlight these days after her daily exercise routine she starts her day by dressing in her protective gear. She then packs a large plastic bag with medical supplies, medical refuse bags and gloves that she will carry with her and use throughout the day. Returning home after work every day, she takes extra caution by removing all clothing before entering her home.
Mhlongo says that the fight to curb the spread of stigma attached to Covid-19 requires vigilant awareness campaigns advocating for tolerance and acceptance. “A convoy of police vehicles and an ambulance rushing to a household is immediately associated with Covid-19. This triggers fear in community members,” says Mhlongo. “We’ve slowly been hearing concerning reports where foreign nationals and certain groups have been blamed for the spread of the coronavirus.
Although these reported cases may be currently isolated, we need to constantly debunk false information during awareness campaigns and door-to-door coronavirus testing and screenings.
Nipping it in the bud
Dr Mvuyisi Mzukwa, chairperson of the South African Medical Association in KZN, says campaigns on Covid-19 need to change. “People get information on the coronavirus through media. This has always been a powerful tool, but it needs to be adjusted and balanced in order to correctly create awareness while minimising the risks of creating more unrest,” says Mzukwa. “People relate better to what and who they know. For now, it’s a matter of nipping the stigma in the bud before more cases arise.
The government, together with other health organisations leading the fight against Covid-19 must work closely with community leaders and influencers. These are the people who can help emphasise the importance of tolerance and empathy when dealing with this health crisis.”
Role of traditional healers
Sazi Mhlongo, leader of the KZN Traditional Healers Association, says government denies the role of traditional healers in the community. “Traditional healers are the first and primary option for millions of South Africans when they need health attention. The government should not discard this factor,” says Mhlongo. “We play a critical role in curbing the spread and emphasising awareness. We want to work hand-in-hand with the Department of Health, but we are not being heard or seen.
Traditional healers and their workers need to be properly equipped with protective equipment and information relevant to help address the coronavirus along with its myths and misconceptions that often lead to discrimination – a deadly effect. ”But some CHWs are sceptical of the role of traditional healers. In a public meeting on Covid-19 hosted by the People’s Health Movement (PHM) in Cape Town earlier this year, some CHWs expressed concern that people will opt for traditional medicine and methods rather than accessing healthcare and testing as provided by health workers and in health facilities.
Tinashe Njanji, coordinator at PHM SA, says support and solidarity towards poor communities in South Africa need to be amplified. “At the primary level, the government needs to work closely with CHWs and community structures,” says Njanji. “The social determinants of health also needs to be addressed. This includes (providing) water and sanitation while ensuring that the disadvantaged communities have adequate food and social support.
Why do we see these issues with stigma in the poorer areas in the townships and not places like Camps Bay?” Njanji asks. “Poverty, lack of adequate shelter, food and services drive desperation and frustration and for that people will use Covid-cases as scapegoats.”
Suffering alone and in silence
KZN Government respondsSpokesperson for the KZN Department of Health Ntokozo Maphisa said stigmatising people with certain diseases is a global phenomenon that is usually based on lack of understanding, misinformation, and misplaced fear.
The Premier of KZN, Sihle Zikalala and the MEC for Health, Nomagugu Simelane-Zulu, have sought to utilise every available media platform to educate the public about Covid-19, and to strongly discourage discrimination of those affected by the virus. The department recognises the seriousness of stigma and always ensures that its public information, education and communication activities are packaged in such a way as to discourage stigma, Maphisa says. “When people know and understand an ailment, they become less likely to discriminate against those who are suffering from it.”
Zikalala has publicly spoken out against the growing stigma in KZN. “We know from the history of diseases such as TB and HIV that stigma undermines efforts to prevent the spread of the illness and does more harm to sick people and society. When people fear prejudice and potential discrimination because of their illness, they are likely to resist screening and testing efforts and might be forced to suffer alone and in silence,” Zikalala said in a recent speech.
He condemned the spread of fake news and myths on Covid-19. “South Africa has no reason to doubt information presented by the World Health Organization (WHO), the Presidency, the Department of Health, and our scientists. This is not a time for conspiracy theories and the spread of unscientifically proven ideas…”
This article was produced by SPOTLIGHT – health journalism in the public interest. SIGN UP for our newsletter.
Image credit: Getty Images
